Alzheimer’s! A subject you may want to forget about, but shouldn’t!

NEWS | | September 19, 2012 at 6:02 pm

I think secretly we all fear Alzheimer’s.  We worry about being ridiculed for being forgetful and not maintaining our independence. We should be! I recall when my mom had her 1st stroke the memory was the 1st sign something was amiss. A mistaken report which failed to notice the huge clot in her brain meant they chalked it up to something “mental”. I saw the fear in her eyes as she looked at me not knowing who I was. The embarrassment of  relying on me for hygiene issues when she had bouts of memory gains. I saw the frustration at herself for not remembering. Thankfully we had her MRI scan again and found the issue and worked with great improvements over the next few months, but it may have been too little, too late as 8 months later she died.

When The Motherhood and Banner’s Alzheimer’s Institute, asked if I would be part of a webinar last week, I cringed. That was when I knew I had to do it. I use the blog to grow and to address my fears. I am glad I did. Expectedly the call got emotional (man, I love that women feel free to cry, really I do).

Staggering points

  • Alzheimer’s is the most common form of dementia and is not a normal part of aging
  • Alzheimer’s is the 6th leading cause of death in the U.S. And the only one of the top 10 causes of death that cannot currently be prevented, treated or cured
  • 5.4 million Americans are affected by Alzheimer’s, and someone is diagnosed every 6.9 seconds

The Alzheimer’s Prevention Registry was created to support and inform people interested in making an impact on Alzheimer’s research to help stop the disease. The latest scientific advances and news is contained in a single place and the Registry supports enrollment into a variety of Alzheimer’s prevention studies across the country.

You need to be 18 years or older but no other requirements are needed to sigh up for the registry. The goal is to reach 100,000 by June 2013! While you are provided with resources as to what is being done to fight Alzheimer’s, you can optionally be part of a research study or not if you are not comfortable with that.

Disclosure: This is a post sponsored by The Motherhood, but driven by my passion to supporting ending Alzheimer’s!

3 Comments

  1. 1
    Yona says:

    My grandmother is showing increasing signs of Alzheimer’s and I fear for my parents – I think it’s devastating when they cannot remember important things or even their children. I have seen signs around town for a Walk to Fight Alzheimer’s and I was thinking of joining. Thanks for the info.

  2. 2
    KathyCash says:

    So glad you participated in this – I always love seeing people that I know support this cause. My dad passed of Alzheimer’s last year and it was so tough to see him change into this completely different person from the one I knew growing up. There’s still so much mystery surrounding this disease and I think we all have the same fears about it happening to us as well as our loved ones! Thanks for writing it.

  3. 3
    JulieK says:

    there was so much about this disease I just didn’t know before – thank you for sharing this important information!

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